"The team’s initial ideas on what MS was about and how to document it collided with the harsh reality I found in Belarus. With this reality in mind, I documented the daily challenges of Andrei Boykatyi, Joulia Chizhenskaya and Nikolai Kleshchanka. I also visited 20 other people affected by MS. All suffered the same isolation. For some of them, the only links with the outside world were a TV, a telephone and, rarely, the internet.
We managed to establish a close contact and I was impressed by the positive attitude of the people I documented. Andrei was doing Qigong exercises. Nikolai, although blind and paralyzed because of MS, was spending hours in front of the TV with his wife, Alena. Her great love for Nikolai means that she has spent the last 10 years giving him the 24/7 care he so much needs.
There is a potential to improve the lives of these people. Changes can be as simple as providing walking sticks or wheelchairs to allow them to get out of their apartments and adapting the elevators for their restricted mobility. But there is also a need for rehabilitation centers and access to drugs that can alter the course of the disease."